Saturday, March 5, 2011

What a week????!!!!

So this last week has been the most hectic week. Dreycin and I went to buy a new stroller on tuesday,  because obviously with me only becoming BIGGER I felt like I needed something lightweight easy for me to get in and out of the car, not mention also to take Dreycin to my doc appts. I had been researching for a while, and finally decided on the chicco liteway in black. After that we went to PotteryBarn Kids storytime. On wednesday and thursday morning we spent it at my lupus doc's office. I had originally gone for my 6month checkup, everything went well and then......later that night due to morning sickness I was throwing up so hard I developed Petechiae all over my face and neck. Normally I wouldnt freak out, but having petechiae for a Lupus patient is sometimes an indicator for low platelet count. So on thursday we went back to my lupus doc, his PA was wonderful worked me up drew some labs. Most of my labs came back ok, but my liver enzymes were elevated,and my lupus complement levels C3 and C4 that were EXTREMELY low. It was a huge drop since my labs were drawn at the end of October. They are actually the lowest they have ever been ever since I was diagnosed wth lupus in feb 2006. The only test we are waiting on now to come back is my bleeding time tests, which will include if I need to be put on additional blood thinners other than the baby aspirin im taking.  To me this was devestating news, I thought everything was going great. I have had some joint pain in my hands,wrists and hips and been VERY tired.....but mainly would attribute all that to 1st trimester of pregnancy. Today I got my haircut and my stylist (who has been cutting my hair for 3yrs) noticed that above each of my temples I had a "thinning" of hair in that area. Hair loss is another symptom of a flare. All my tests were conclusive that my lupus is active and I am having a flare :( I have my next OB appt on March 14th, and they are going to redraw my complement levels on that visit and the next in April.  I feel like maybe I was in denial, ignoring the symptoms. Now looking back, I just thought that this pregnancy was going so much better than my last? Or maybe I wanted it to. I have alot of questions.....like at what point do my levels get so low we start prednisone? What harm if any is this causing our baby?  What risk does this pose for me post-delivery, will i have a flare-up? Will I have to take immunosuppressants, like chemo drugs or even chemotherapy. Ughhhhh, so many questions that will have to wait until my next appointment on March 14th. Im sad, when I should be happy :(
The week ended with me taking Dreycin to gym on Friday morning, we had a great time! He had his first team photo with all his fellow gymnasts! He also got some individual pics, cant wait to get them in 3-4wks!
Im hoping for a uneventful week, this next week. Unless its news on where the HELL we are going come May, and can take our 10days to go look for housing and DOCS for me and Dreycin.
Today has been mostly relaxing, I stayed in bed until noon, got up and did my YOGA MAMA dvd, which is so relaxing! and then got my haircut and worked from 6-10pm(I only had to do 2 psych assessments). And I have to mention that my hubby made the best potato and sweet potato fries tonight! my food selection is still very uhhh.... limited!

2 comments:

  1. Hello beautiful Mama!! I'm sorry that you had such a crappy week!! But I know that you are a very strong woman and you will get through this. Just know that we love you very very much and if you need anything at all let me know!! Baby Lance can't wait to meet his Auntie Cindy!!!!

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  2. Ok. I am behind because I did not know about baby #2. Yay! Congrats! I know I can't understand or relate to your situation, but I am trying to focus on these: 1. endurance, 2. patience, and 3. joyful thanksgiving. Sometimes things are happening that we feel like we have no control over, and in those times these three things can remind us that even though we don't understand... He always understands... and putting our focus here can help shift our perception of the situation. Love you!

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