After a weekend of Dreycin having a fever we went to ENT on Monday AM and sure enough he had a double ear infection. The tube on the left is working so the infection is draining out, but the other ear the infection is inside the ear :( we spent the morning getting meds and came home and he slept most of the afternoon. That evening him and B were playing and he knocked his head into B's back and had another seizure like episode. I was in kitchen making cookies, and I heard B start to grunt like Dreycin was bothering him and I went over and Dreycin cried for a second, I picked him up and I noticed his lips going blue and then he became very pale and his eyes dilated mouth clenched arms flailed in jerky movements and then he went completely stiff.when I first noticed it was happening I screamed to Derek it's happening again as I had him in my arms and ran over to the couch with him. Now each time this happens Derek feels the need to come over and take him out of my arms, he told me later that he just can't stand there watching him like that. Dreycin remained stiff in his arms. I was talking loudly to him saying breathe Dreycin breathe, and he came back and went straight into crying. It is so scary I just want answers at this point. I did find many websites that suggest a diagnosis of pallid breath holding spells (google if curious) which seems like what he is having at this point. It can sometimes be caused by cardiac issues or anemia. We have been referred to Nemours Pediatric clinic in Jacksonville, Fl it's 3 hrs away which is a bummer but there is a naval base there we can get a room at for the night. Don't have an appt just yet but I don't doubt they could call and say Friday and I would say ok! My mind as a mother goes crazy searching for answers on the Internet, reflecting on every single piece of his medical history. Including the fact that I carried an anti RO antibody that sometimes cause heart murmurs in children of lupus patients or the fact that he was watched so closely in utero for hydrocephalus, and the last two surgeries he was given anesthesia. You go back and think about every detail, questioning everything. I feel sad, helpless, and a lot of time cry when I think about it. I worry it will continue to happen. One concern I didn't even think, but Derek did was sports. How will he play sports if every time he falls or bumps his head he has an episode?
No more runny noses, congestion, coughs, they are both doing much better. Dreycin doesn't have the best appetite on the antibiotics but definitely can tell he is up for playing more!!!
Our house here on base has been downsized a room, they are trying to see if there is a leak from a drain under the house! A lot going on this week, at least Derek is off and here at home helping me for a few days!!!!!
The Pic with the gate up and D in the chair is the room that is being worked on! And D wanted to take a bath where b did in the sink so we let him! And In the background my pretty sunflowers that I got at farmers market this past weekend. A pic with them playing at the water table in the garage thanks to the gnats and D with his moto helmet.
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