Toddler EEG

As the week leading up to our EEG approached I was so emotional, I think this last week has made our current situation/future become a harsh reality for me being alone with the kids. Anything would get me teary eyed this last week. We left for Jacksonville on Thursday evening, and that morning afternoon I was running errands with the kids all morning! Two dr appts, library class, oil change, and lunch!
Earlier that morning my mom was suppose to be on a flight to Panama but was told she could not fly international because her passport was within 3mos of expiration! None of us knew that rule! So we talked about her flying into Jax, Fl to meet us and stay with us for a while.....and that's what happened the next day she met us and is staying a little over a week! We spent the morning at the zoo, the tech had called the day before and suggested that we bring him in ExhAUSTED! So we kept him up until midnight woke him up at 7am, and had a blast at the zoo! He fed the giraffes, saw the elephants, made bird calls like the storks, saw an anteater for the first time, and really got a kick out of rising the train!! B man loves animals and also had quite the adventure, but did fall asleep the last hour we were there! Then came time to go to Nemours Children's Clinic for our appt, the staff was great but the EEG is not meant for small children. Dreycin and I laid on a large hospital bed. I physically had to hold him down for 40min for the nodules to be placed on he screamed cried and kicked the entire time. The lady kept apologizing to me saying I was taking on a majority of the appt, but whatshe didnt know was that it was taking everything I had to not cry with my baby. I just kept saying we are almost done and you wont have to do this again, I'm so sorry.....over and over. He kept saying the tech was hurting him :( and he was sweating profusely, which made it harder for nodules to stay on so she started wrapping his head with gauze. I had brought the IPad with us to make it easier, which it did. We watched a spider bedtime story and watched the read to me version of Toy story 1. He was still crying on and off after the nodules were put on, but not as much like when they were getting put on. By this time I noticed he was getting really drowsy so she asked me to turn off iPad and see if we could get him to nap. She turned on her sound machine and he was out in less than 3min, I think the crying wore him out but he was also laying beside his mommy and I was hugging him very tight! The tech had to get 3 readings, awake, falling asleep, and waking up. When it was time to wake up Dreycin he was not happy once again, he did not want us to take off nodules or even touch his head :( and he had a Vaseline gunk all over his head that I pretty much left on. Wasn't worth making him cry more. We left, and we're getting off the elevator and there was my mom, Derek, and B waiting for us. While we were in test Derek & B went to pick up my mom from airport, a very impromptu visit but I'm glad she is here. It took Dreycin just a few minutes to warm up to my mom, and he has been attached every moment since! The next day we spent at St Augustine Beach, and made some great memories! We went and visited my Aunt & cousins who live in Jax and then on Sunday I made one last stop to Whole Foods for a massive grocery trip! Then we headed back home. As I'm finally finishing up writing this we are driving back to Florida for his second appt tomorrow. But first we are making it a beach day at Fernandina Beach about 45 min from Jax! We have to take advantage of getting out of Albany and enjoying new places! As we drove down here I researched more about Dreycin's condition and now have quite a few questions for the doc, and actually found a center dedicated to research on breath holding spells in Houston. The more I research the more I am convinced D has a vagal nerve dysfunction due to his symptoms. We will see what the doctor says, but i just hope they have the time & patience for all my questions.