In oct '11 Bronson was 6 weeks old and began having blood in his stool, I went on a crazy dairy/soy free, hypoallergenic diet to continue breastfeeding. Every doctor we saw said I needed to put Bronson on formula and I refused, I knew what was best for my son. So finally at 5mos old they allergy tested him by blood and prick tests(meanwhile blood still occurring on and off, almost daily) and it came back that he was allergic to dairy,eggs,chicken, pork, and shellfish. His official diagnosis was food protein induced entercolitis(FPIE) in which for some reason young children can not properly digest food proteins, more commonly dairy.
This is where I'll add if you haven't seen forks over knives you need to, dairy is bad for humans! So after the testing I cut out chicken and eggs, (i was already not eating pork and fish) and decided vegan was the way to go not just for me but the entire family. Looking back at all the sacrifices I made and just can't believe that I had the strength to continue to fight all those doctors for what I believed in. I believed I could help my son heal with giving him the best through me. During all this in march '12 Dreycin began having breathholding spells, which mimics a seizure & tonic like movements....scariest event of my life to see my baby boy go through that. And in April '12 while we were at home and ate at Gloria's I accidentally had cheese which was in the beans and Bronson had a relapse of blood in his stools. My emotions for my both of my son's health have been a roller coaster since Oct '11. In June Dreycin had another episode, and we were finally referred to a neurologist. In July we saw her she ordered an MRI and an EEG. The EEG was normal, but the MRI wasn't scheduled until 2 weeks before Derek deployed, oh yeah my husband found out he was deploying at the end of July. The MRI was a brutal 1hr for Derek and I when Dreycin was put under anesthesia, and then a few days later the drs told us that we would have to put him under again for an MRA due to the absent flow of blood in the right vertebral artery. At this point I knew I would get a 2nd opinion in dallas. So basically Derek was like we are done, we aren't doing anything else and we hoped that he would outgrow the spells as the drs told us that is commonly what happens. I think he just didn't want me to have to go through anything by myself in dallas. Well I got to dallas, got referrals for both boys to allergy and neurology(in October, I knew it would take months to see specialists) Allergy came sooner, and our plan was to test Bronson mid January. Neurology was a wait, our appt was for jan 8th. So I had the boys Pappa k and Abuela come with us to the appointment to help me, so that I could focus on what the doctor said! The doctor was a godsend, he was thorough, kind, funny, caring, and also had a daughter with breathholding spells! He took the time to look at all 837 MRI images with my mom and I! He explained to us that Dreycin was born without a right vertebral artery due to a genetic malformation, prob runs on Derek or my side of the family. At this point the left vertebral artery is compensating the brain with enough blood and If it were not we would be seeing developmental delays or regress in Dreycin. So that was some great news that in some ways I wasn't expecting while Derek was gone. One less sorry I have to worry about :) and then came the allergy appointment Bronson was retested and the only thing that was positive was dog hair and dairy! Double yayyyyyyyyy!!!! And Dreycin isn't allergic to penicillin! So even if the move to dallas was hard, not paid for by the military, I got the absolute best news in January '13 that both my boys despite health issues were going to be fine. The relief my heart has overcome, and the amount of tears I have cried for joy and my own strength through all this is overwhelming. I wish my husband was here to share my emotions with, but instead I did it in spin class! Only 9 more weeks until my love, the father of my beautiful miracle healthy children will be home and we will be a family again.
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